Has a family member  been diagnosed, and they’re urging you to get checked out? The idea of having an autoimmune disease is distressing enough. The thought of taking the steps to found out for sure may seem daunting. It’s not a surprise. There are a lot of competing voices out there.

Take a deep breath. I’ll share a bit of my own journey, facts from trustworthy organizations, and try to help you figure out how to best navigate your concerns on being tested for Celiac Disease.

1. Don’t Change Your Diet Before Antibody Testing

I’ve heard so many heart breaking stories of people who’ve stopped eating gluten prior to being tested for Celiac Disease. Maybe they did it on their own because they wanted to feel better. Maybe a doctor told them to stop prior to testing. DON’T DO IT! All of the accurate testing methods we have to date require the consumption of gluten.

Wheat Allergy vs. Celiac Disease. Vs. Gluten Sensitivity

Maybe you’re thinking, “If I feel better eating gluten-free, what’s the difference?” There’s a lot of difference, according to the University of Chicago Celiac Disease Center. There are three medical issues linked to wheat (wheat allergy, Celiac Disease, and Non-Celiac Gluten Sensitivity) that are distinctly different and require different treatments. Celiac Disease has many associated health issues, such as thyroid disease, osteoporosis, and other intestinal issues. It is important to have an accurate diagnosis to make sure you are getting proper follow-up care. Also, the term “gluten allergy” isn’t accurate.

What If It’s Actually Chron’s Disease?

In addition, Crohn’s Disease and Celiac Disease have many overlapping symptoms, and again require different treatments. (I actually know of a young man who was misdiagnosed for years with Celiac Disease when in fact he had Crohn’s. Not fun.) There are over 300 symptoms that are associated with Celiac Disease, which can make it difficult to diagnose. You owe it to yourself to know for certain!

My Doctor is Worthless / Refuses to Test Me

I know that there are plenty of not-so-great doctors out there. I’ve had my fair share. For those living in Michigan, I highly recommend the doctors at Michigan Medicine Celiac Disease Program. The Celiac Disease Foundation also provides a list on their website of doctors, dietitians and other medical professionals that they trust.

2. Ask Your Doctor to Run Some Blood Tests

A. Celiac Disease Antibody Panel

Doctors have tested for Celiac Disease through the years with a variety of blood work tests. As medical science gets better, so do the tests. As of today, the best test is “tTg-IgA”. This is short for Tissue Transglutaminase Antibodies. It is highly accurate and is positive in 98% of those with Celiac Disease. It is also low in what we call “false positives.” This means that it will accurately come back negative in 95% of those who do NOT have Celiac Disease.

What About False Positives and False Negatives?

“There is a risk of a false positive especially for people with associated autoimmune disorders like Type 1 diabetes, chronic liver disease, Hashimoto’s thyroiditis, psoriatic or rheumatoid arthritis and heart failure, who do not have celiac disease.“
Because there is some wiggle room, doctors SHOULD run these additional blood antibody tests-

Endomysial Antibodies (EMA), total serum IgA, and Deamidated Gliadin Protein (DGP)

Also please know, that as great as science is, it is still possible for lab tests to come back with a false negative. If you still feel awful, and especially if you have a family history of Celiac Disease, continue to consult with your doctor. Share this guide from the Celiac Disease Foundation if they seem unsure of what tests to run.

Antibody Testing in the Black Community

Recent research has shown that antibody testing in the Black community is not always accurate. A 2022 study showed that “Eighty percent of Black patients with biopsy-confirmed celiac disease in the registry had TTG test results that were less than the upper limit of normal, compared to about 9 percent of non-Hispanic white patients in the registry.” I urge my Black friends to test for an upper endoscopy, even if antibody testing doesn’t suggest Celiac Disease.

B. Genetic Testing

Scientists have now been able to decipher where the sequences of Celiac Disease reside on our genetic makeup. At this point, genetic testing can only be used to rule out Celiac Disease. Doctors state that if you do not test positive for HLA DQ-2 or HLA DQ-8, you cannot have Celiac Disease.

Unfortunately, simply having those genes don’t mean that you DO have Celiac Disease. A large portion of the population (30%) has those genes, but only 1% of the population develop the disease. Because of this, genetic testing CANNOT be used to diagnose Celiac Disease in those who have already stopped consuming gluten. 

3. Meet with a Skilled Gastroenterologist for an Upper Endoscopy

This is me getting ready for a follow-up endoscopy with my new gastroenterologist. A small bowel biopsy, via endoscopy, is the gold standard for being tested for Celiac Disease. I was diagnosed with Celiac Disease in 2001. Fast forward to 2017. My original gastroenterologist followed up only ONCE. He never scheduled follow-up antibody tests to make sure my body was healing. Neither did he check me for osteoporosis, thyroid or other issues. After a move 60 miles away, I decided it was time for a change.

My endoscopy was pretty easy. I didn’t need to drink any junk (that’s for a colonoscopy), and I had to not eat anything for about 10 hours prior to my procedure. Once I was in the procedure room, they were finished in less than 15 minutes. I was under complete anesthesia the whole time. I hear stories by some that weren’t under anesthesia, either because they didn’t want to be or their doctor was foolish.

What Exactly is an Endoscopy?

I’ll explain what an endoscopy is, as that seems it is what makes most people most anxious in being tested for Celiac Disease. During an endoscopy, they stick a small tube with a camera in it to visibly inspect your esophagus, stomach and the duodenum (top part of the intestines.) They also take small bits of tissue, called a biopsy. Tiny, tiny bits of tissue. Small, barely there bits that go under a microscope. These bits are tested and inspected for damaged villi, which are responsible for absorbing our nutrients. This video is great for children who are anxious about underoing an endoscopy.

How Many Samples Should My Doctor Take?

Make sure that your gastroenterologist is taking at least 6 samples from various places in the duodenum. One sample is not enough to make a definitive diagnosis. Celiac Disease can affect one patch of the intestines and not another. More samples are always better. This medical standard in Celiac Disease testing is better explained in the University of Chicago Celiac Disease Center’s explanation of an endoscopsic biopsy.

There may be a day in the future when we will  have less invasive ways to diagnose Celiac Disease. But until then, I will personally still advocate for an biopsy via endoscopy. During the biopsy, doctors might notice items of additional concern. For example, my follow-up endoscopy revealed a hiatal hernia.

4. Meet with an Educated Dietitian and Other Resources

So you’ve been poked, prodded, tested and inspected. You’ve been tested for Celiac Disease and the results are positive. Now what on earth do you do? It’s not as simple as “just take gluten out of your diet.” I mean, that’s what we need to do, but it’s a big learning process. What is gluten? Where does it hide? What other nutritional deficiencies should I be concerned about? Can I ever eat pizza again?

Step 1 After Diagnosis – Find a Knowledgeable Dietitian

This is where a good dietitian who is versed in Celiac Disease is a good place to start. I would again use the CDF provider directory to find one a knowledgeable dietitian. Remember, dietitians have to learn A LOT in school, and some may not be well versed in Celiac Disease. I know Gluten Free Watchdog has offered, in the past, to help people find a good dietitian.

Step 2 – Develop a Support System

I always recommend finding a local Celiac Disease support group. You can find some in my list of local and national resources.  Many groups have a dietitian who advises their group as well. They are also the people who have been navigating and living with this disease everyday They are the ones who have walked in the shoes that you now find yourself in. They know the emotional side of Celiac Disease.

There are lots of good online resources for those of us who are newly diagnosed. The Gluten Intolerance Group, the Celiac Disease Foundation, and Beyond Celiac are all organizations devoted to helping those with Celiac Disease. They all excel at certain aspects of Celiac Disease management. The University of Chicago Celiac Disease Center is an excellent resource as well. Their “FAQ” section is the biggest searchable question database I’ve ever seen. The offer a free E-book to help you “Jump Start” your gluten-free lifestyle.

Be Careful of Who You Follow Online

There are lots of self proclaimed experts online. Make sure that whomever you are following is providing sound medical advice. While I usually don’t “call out” pages I disagree with, I have reservations about Celiac.com and the Gluten Free Society. The first, as explained by Gluten Dude, has lost its credibilty. The second has always been about making money, and promotes unsound medical advice. Just remember, if someone is spouting something too good to be true, it likely is.

Hopefully I’ve given you some information that’s been helpful in regards to being tested for Celiac Disease. I will state clearly that I’m not a doctor, dietitian, nurse or “certified” medical professional. I am a previous Celiac Disease support group chair and a Celiac Disease advocate. I’m a fellow “gluten free gal,” whose been diagnosed with Celiac Disease for over 20 years.

I’m walking this journey with you, every step of the way.

How were you diagnosed with Celiac Disease? What part was most concerning for you? What insights can you share with those who are about to be tested for Celiac Disease? Please share your thoughts below!

Originally published 2018

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Celiac Disease is An Autoimmune Disease, Not a Food Allergy

Celiac Disease is an autoimmune disease. This can be confusing because sometimes you’ll even hear someone with Celiac Disease refer to it as an allergy when we’re eating out. (More on that on another day.)

An autoimmune disease is a “disease in which the body produces antibodies that attacks its own tissues, leading to the deterioration and in some cases the destruction of such tissue.”

Examples of other autoimmune diseases include Type 1 Diabetes, Lupus, Rheumatoid Arthritis, Multiple Sclerosis and more. To make it more interesting, autoimmune diseases are like birds – they like to flock together. When someone has an autoimmune disease, they are likely to develop another one later in life. We’re a blessed bunch, aren’t we?

Celiac Disease is Genetic

Celiac Disease is also a genetic disease. This means that the “code” for this disease is passed on through our genes to our offspring. For example, my grandmother and father both have Celiac Disease.

Interestingly enough, simply having the genes for this disease does not automatically mean that you will develop it. Thirty-five to forty percent of the general population carry the HLA DQ2 or HLA DQ8 genes, but only 1% of them will actually develop Celiac Disease. This is why genetic testing is not sufficient to diagnose the disease. Only to rule it out.

How Does One Get Tested for Celiac Disease?

So how does one get tested for this autoimmune disease? The two B’s – blood work and biopsy. And for these tests to be accurate you have to “B” eating gluten. (See what I did there? I’m so punny.) Doctors traditionally order a Celiac Disease panel that screens for the tTg, EMA, and DGP antibodies. I explain this more in depth on my post on how to get tested for celiac disease, accurately.

If those come back with a high level of antibodies, the next step is a small bowel biopsy done via endoscopy Before you panic, an endoscopy is performed by passing a tube through the throat, so there’s no need to drink the “junk” prior to this procedure. People sometimes comment that it’s highly invasive. Sure, there are some tissue samples, but more cutting and anesthesia is given when someone has their wisdom teeth out. It’s really not that bad. At least in my opinion.

How Does Celiac Disease Affect the Body?

As I mentioned above, the antibodies created by ingesting gluten destroy the body. Specifically, the antibodies destroy the villi that line the intestinal wall. Villi (vill- eye) are small finger-like projections that line the wall of the bowel. They’re little nutritional vacuums, sucking up all the vitamins and minerals from the food we eat.

They absorb the calcium we need for strong bones, the iron we need for red blood cell production, the B6 vitamins we need for metabolism. The list goes on and on. Without those little guys, we’re one big heap of malnutrition. Our body systems can’t function properly without those nutrients, which is why Celiac Disease has so many symptoms and is often misdiagnosed.

What Symptoms Does Celiac Disease Cause?

Due to this malnutrition, Celiac Disease causes some very unpleasant symptoms. Some of these issues can be embarrassing. Before I was diagnosed, I had the most foul smelling gas. I had chronic constipation. Some symptoms can be painful. Joint pain plagued me all throughout college

Some of the symptoms can be dangerous. There are many times that I had racing heart rates, which made me anxious that I was having a heart attack. Beyond Celiac shares a list of celiac disease symptoms, as well as a symptom checklist you can share with your doctor.

It’s Not In Your Head. It’s in your Gut.

Among these symptoms are also neurological and mental health issues. I think this is important to include, as anxiety and depression is on the rise in this country. While these are very real diseases which often require medical intervention, it’s worth mentioning that the food we eat can play a large part in the way we feel emotionally.

There are those with Celiac Disease who may never have physical symptoms from ingesting gluten, but have very serious panic attacks. I personally had one every morning for a year prior to my diagnosis. It’s definitely not fun. I also share this for those who may think that “a little” gluten won’t hurt someone with Celiac Disease. Please don’t mess with our food, because it can literally mess with our minds.

Celiac Disease is Life Changing, Not Life Ending

Celiac Disease changes more than our bodies. It changes our relationship to food, and often to other people. Social engagements often revolve around food, therefore we need to learn to navigate relationships as well. However, this disease does not have to define us or feel like a death sentence. In fact, a gluten free diet helps our bodies to heal so we can live our best life.

However, it often feels overwhelming, especially in the beginning. Let’s take some baby steps, together, in a series of articles I’ve written. First, let’s learn about the gluten free diet, and what’s safe and unsafe to eat. Next, let’s discuss how to take care of ourselves after receiving our diagnosis, both physically and emotionally. Lastly, we’ll discuss venturing outside of the home to eat with others, and resources that can help us learn more about this disease, and keep us healthy.

Welcome to the Celiac Family

Hopefully this primer has been helpful. Please know I have a whole category on my website devoted to living with Celiac Disease. It includes articles about research, food labeling, and so much more. I also have a post about “Celiac Disease Truths I Wish you Knew,” that contain images and memes you can use to educate others.

Last but not least, a few things you I want you to “hear.” One, you did not cause this to happen to you  (or your children.) It happens, so please lay aside any guilt you may have. Also, please know you are not alone. There are many in our community who are eager to help. Email me or reach out to me on social media anytime!

Let’s help spread the knowledge. What’s one thing you’d tell someone who is newly diagnosed? What insight or encouragement would you share? Add it in the comments below! 

Originally Published May 2016

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Aren’t Trader Joe’s and Aldi the Same?

People often (incorrectly) assume Trader Joe’s and Aldi have the same parent company. The two businesses were separately owned by two German brothers. Originally the brothers jointly owned Aldi in Germany. However, after a difference of opinion, they amicably split the company into Aldi Sud and Aldi Nord.

Aldi Nord acquired the Trader Joe’s chain that started in California. Aldi Sud operates the Aldi locations in the United States. Confusing?  The Kitchn further explains the Aldi and Trader Joe’s connection, for those who want to dig deeper. However, like Aldi, Trader Joe’s relies on separate manufacturers to make their products, placed in Trader Joe’s packaging. The practice is often called “private label.”

Trader Joe’s Gluten Free Labeling Guidelines

Trader Joe’s website states “If you see “Gluten Free”on a Trader Joe’s product, this means that the product has been validated to contain less than 20 ppm of gluten (or made in a certified gluten free facility). Individuals with Celiac Disease or Gluten Sensitivity must avoid gluten for their health.”

Some people, myself included, choose to eat some items not specifically labeled gluten free, based on ingredients. Trader Joe’s has stated in past emails, “We do have many products that are made in facilities that don’t process gluten, even though it’s not labeled gluten free. Generally, [the reason it’s not labeled] is because the supplier doesn’t want to pay for certification.”

Gluten Free Bread & Baked Goods

Trader Joe’s stocks gluten free white sandwich bread and gluten free whole grain bread. Many people declare this to be their favorite gluten free bread.

They also sell gluten free bagels, and I especially love the “Almost Everything” Bagels. Not a fan of “everything”? They sell plain gluten free bagels as well. Every fall people look forward to the gluten free pumpkin bagels from Trader Joe’s.

This small Gluten Free Yellow Mini Sheet Cake from Trader Joe’s is SO good. My husband and I bought this to celebrate our anniversary, just the two of us.

Gluten Free Cookies

People LOVE Trader Joe’s Gluten Free Joe Joe’s cookies. The gluten free chocolate chunk cookies pictured below are definitely a fan favorite. They also have gluten free oatmeal cookies as well. They stock many more gluten free treats than I can picture here. **Update- The Gluten Free Joe Joe’s now contain oat flour. 

Gluten Free Frozen Foods

This highly popular Gluten Free Cauliflower Gnocchi is now labeled gluten free. I really like Iowa Girl Eats’ tips on cooking cauliflower gnocchi. Trader Joe’s also sells cauliflower and butternut squash pizza crusts, which ARE labeled gluten free.

I have not personally tried these gluten free chicken nuggets. I know my friend Amanda of Eat at Our Table loves them, as do the rest of her family.

You’ll find many Trader Joe’s gluten free foods in the freezer section. This gluten free macaroni and cheese works great in a pinch. They also stock a gluten free cheese pizza, and a gluten free Chicken Tikka Masala. There are also many other items, again not specifically labeled gluten free, that contain no gluten ingredients.

Don’t forget breakfast. These gluten free toaster waffles are way cheaper than the name brand ones you find in other stores. They also sell gluten free (and dairy free!) frozen pancakes.

Gluten Free Cereal & Grains

Can’t Eat Oats? Then you’ll love this gluten free and grain free granola from Trader Joe’s. It does contain almonds, so if you have a tree nut allergy you will want to avoid this.

Gluten Free Dry Goods & Spices

You can stock your pantry will all sorts of gluten free goodness at Trader Joe’s. They sell their own gluten free all purpose flour blend, as well as almond flour. In addition, they stock various mixes. Their gluten free pancakes mix is an old standard.

While the Trader Joe’s Gluten Free Chocolate Chip Brownie Mix is a permanent product at the store, their website says the Ube Mochi pancake and Waffle Mix is a limited item. (But I swear I see it there all year round.)

At this point, I think the words “Everything But The Bagel” are synonymous with  Trader Joe’s. On top of the famous seasoning blend, they how have Everything but the Bagel smoked salmon and Everything but the Bagel yogurt dip.

This is not listed on the Trader Joe’s gluten free list, however none of their spices do either.  However, I consume this, their baking powder, and cocoa all  without issue.

While these Trader Joe’s Fried Shallots are not specifically labeled gluten free, they have only two ingredients – Shallots and Palm Oil. These are a great substitute for French Fried Onions at Thanksgiving.

Gluten Free Fresh Foods

For those who are wondering, Trader Joe’s offers a wide variety of fresh foods. Produce, bagged salads, a large cheese selection, dairy and non-dairy alternatives and eggs.

This fresh gluten free fettuccine is popular with so many people. If you liked the ones during the Aldi Gluten Free Special Buys this year, I’m 99.9% certain this is the exact same manufacturer, which is Taste Republic.

I love that Trader Joe’s offers a plain gluten free ravioli year round. I have a video where I make breaded and air fried ravioli. These would be PERFECT for that recipe. In the fall, Trader Joe’s also sells a gluten free pumpkin ravioli.

This gluten free pizza dough can be a huge time saver. It’s sold fresh, not frozen, so you don’t need to wait for it to thaw.

Gluten Free Snacks

So many tasty gluten free snacks abound at Trader Joe’s. Some are unique, like this Gluten Free Sweet and Spicy Rice Cracker Mix.

In addition, they sell some fun potato chip flavors, some of which are seasonal.These Ranch Flavor Rolled Corn Tortillas chips are SO much fun to eat!

Gluten Free Seasonal Items

Just like Aldi, every season new Trader Joe’s gluten free finds hit the shelves. Everyone’s excited about the fall offerings every year, including this gluten free pumpkin pancake mix, and their gluten free pumpkin bread mix. In addition you’ll find their maple butter, apple cider jam, and new gluten free pumpkin bagels at this time.

These Trader Joe’s Gluten Free Pumpkin Pie Spice Donut Holes are a newer item. They are SO good. I could easily eat them all in one sitting if left to my own devices. They also sell gluten free chocolate donut holes year round.

Different seasons offer different items. I *think* this gluten free cornbread mix is only available in the fall.

Stuffing and frozen gluten free pie crusts hit the shelves last year mid to late October.

To see the newest product releases, I highly recommend following the Instagram account @traderjoesglutenfree, as well as the official Trader Joe’s account, highlighted below.

Shopping Gluten Free at Other Stores

Looking for more information about shopping gluten free? You can check out my articles about shopping gluten free at Aldi, Kroger, Meijer, Horrocks and Plum Market. My friend Sandi has excellent posts about shopping gluten free at Walmart and Costco.

SO MUCH MORE!

Trader Joe’s offers more than I can possibly photograph and mention. Please comment with your favorite Trader Joe’s gluten free items below!

Trader Joe’s Online Info

Website | Instagram  | Pinterest

The post Trader Joe’s Gluten Free Finds appeared first on MI Gluten Free Gal.

Dining Out Gluten Free – Questions about Staff  Training

• Do you have a gluten free menu and how do you train your staff regarding it?
• Has someone in your kitchen been ServSafe Allergen Trained?  (This is a requirement in Michigan.)
• Does a second set of eyes verify the meal is gluten free before it leaves the kitchen?
• Do staff serve gluten free meals on unique plates or include an “allergen” pick?

Dining Out Gluten Free – Questions about Utensils and Cookware

• Does your kitchen staff know to change gloves prior to cooking a gluten free meal?
• Do you have a dedicated prep space for making gluten free meals?
• Do you have separate cutting boards or utensils, or will you use freshly washed ones?
• Do you have dedicated pots, pans or utensils strictly for gluten free food?

Dining Out Gluten Free – Questions about Cooking Methods

• Do you have a dedicated fryer?
• Do you have a dedicated toaster and / or waffle maker?
• Do cooks grill meat on the same griddle where bread is toasted?
• Do cooks prepare omelettes in the same spot they cook pancakes?

Dining Out Gluten Free – Questions about Pasta and Sauces

• Do cooks heat fresh water for cooking gluten free pasta?
• Do you have a separate colander / strainer for gluten free pasta?
• Do you use soy sauce or Worcestershire sauce, and are they gluten free?
• Do you use bouillon for your soups or marinades, and is it gluten free?

Dining Out Gluten Free – Questions about Pizza and Sandwiches

• Do you place barriers between GF sandwiches / pizza if made in a shared space?
• Do you use a clean ladle for pizza sauce?
• Do you use condiments / toppings out of fresh tubs?
• Do your baked goods or buns/crusts contain oats?

. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .

Call Between 2-4 pm

This list is not exhaustive, and at the same time is not meant to exhaust you! I received my Celiac Disease diagnosus almost 20 years, and I still realize questions I need to ask. Hopefully this list of questions can help guide you into having a safe and delicious dining experience.

In addition, I always suggest calling a restaurant prior to dining out. Ask staff how they accommodate those dining out gluten free, and use these questions as a guide. Restaurants generally experience a lull between 2 o’clock and 4 o’clock. Therefore, I suggest calling then.

Other Tips On Dining Gluten Free, Away from Home

Looking for more insight on eating outside of your home? Visit my other post for tips on successfully eating out at the home of a friend or loved one. You’ll also find information about phone apps and other resources that may be of help! Of course, also visit my restaurant review listings to find a place where I experienced success!

What other questions or considerations would you add to this list? Feel free to comment below!

**All images used with permission of Pexels and Canva.**

Originally Published August 2018

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Who Am I to Give Parenting Advice? 

I have no children. Therefore it may seem odd that I’m writing a post trying to encourage parents. I have, however, listened to many parents with concerns and burdened hearts. In addition, I’ve been blessed to run a gluten free camp, and see firsthand how children have thrived and grown despite their Celiac Disease diagnosis. 

Living with Celiac Disease is a fine line between trying to get people to take our health seriously, while also not allowing it to hold us back from living a full life. It’s hard enough as an adult, and even harder to explain to our children. Hopefully this post can encourage you and your kids that a gluten free life can be a good, eventful life. 

Dear Celiac Parent, this is not your fault.

Celiac Disease is genetic. And often I see parents who feel guilty, awful that they passed on this disease to their child. And while I can’t tell you how to feel, please hear me say that this is NOT your fault. We know 30% of the population carry these genes, but only 1% develop Celiac Disease. We have no idea why I have Celiac Disease, but my sister doesn’t. There is nothing you did to cause this, and nothing you failed to do to prevent it. Be kind to yourself. 

Dear Celiac Parent, one day your child will thank you

Living with Celiac Disease as a child is difficult. It may make them feel anxious and frustrate. They may feel they had to grow up way too fast. But one day, they will thank you for trusting your hunch that something was wrong. That you fought for a diagnosis and never gave up. One day they will understand that by gettting diagnosed young, they avoided years of unexplained symptoms. 

Dear Celiac Parent, you will make mistakes.

Just allow yourself the grace to know this now. You will obviously try your hardest to make sure that your child never ingests gluten. But we’re human. Mistakes happen. And you’ll do all that you can to make your kid feel better. You are not awful or careless. You’re human, and you’re learning. And your child is learning how to react to mistakes by how you handle them. 

Dear Celiac Parent, empower kids to manage their own diet

Parents want to shield their kids from pain. That’s natural. However, at some point, your kids will leave the house. Whether it’s grabbing something to eat with high school friends. Or totally on their own after they graduate. They need to learn how to keep themselves safe, and they need to see that you trust them to make good decisions.

Dear Celiac Parent, it will get easier.

When your child receives a Celiac Disease diagnosis, it can be overwhelming. Removing any and all gluten from one’s diet is no quick and simple task. You’ll likely feel overwhelmed. Not sure who to trust. But with time, you will. You will become a better gluten free chef and baker. Your kid will find gluten free products they love. It. Does. Get Better.

Dear Celiac Parent, being included doesn’t have to mean “same.”

Unfortunately, there are times where our kids won’t be able to eat the same things as every one else. Sometimes that means we bring a treat. Or do something special at home. My friend, whose two daughters have Celiac Disease said, “They won’t always have the same food. As long as they enjoy the food they are having; that’s all that matters.” Ask your child what inclusion means to them. 

Other helpful resources for parents whose children have Celiac Disease

• Children’s Books that Explain Celiac Disease
• Brands of Gluten Free Playdough
• Top 8 Allergen Free Snacks
• Gluten Free Mason Jar Cupcakes to Go
• Celiac Mama’s Guide to Gluten Free at School
• Raising Our Celiac Kids
• Save 10% on Little GF Chefs Baking Kits with code MIGFGAL

Do you have a child with Celiac Disease? What would you tell a fellow parent?
What encouragement do you wish was shared with you at the time of their diagnosis?

Originally Published May 2022

The post 6 Tips For Parents of a Celiac Child appeared first on MI Gluten Free Gal.

Is Cheese Gluten Free?

Yes, cheese is gluten free. While some may be concerned about gluten in shredded cheese, I have not seen one that contains wheat, rye or barley. Wheat by the Wayside wrote an excellent article, answering the question, “Is Shredded Cheese Gluten Free?” If you have further concerns, buy bricks of cheese and shred them yourself.

Are Cheez-Its Gluten Free?

The original Cheez-Its are made by Kellanova (Kellogg). The original recipe is NOT gluten free. However since 2025, they have launched Gluten Free Cheez-Its. They are certified gluten free and contain real cheese.

Where Can I Buy Gluten Free Cheese Crackers?

I list below more than a handful of companies that make gluten free cheese crackers or snacks. Each product links to their company website, and most should list their product ingredients. Some companies offer a “where to buy” feature so you can find these products near you.

How Do I Make My Own Gluten Free Cheese Crackers?

In addition to list of gluten free cheese crackers available at stores, I included two homemade gluten free “Cheez-Its” recipes. One recipe contains grains and dairy. The other recipe is vegan and grain free. You will find these recipes at the end of the list.

WHY? SNACKS® Gluten-Free Cheese Crackers

WHY? SNACKS® Gluten-Free Cheese Crackers are seed-oil free, Non-GMO, and TBHQ-free, with that incredibly nostalgic flavor you don’t have to pretend to like. Plus, it’s made with organic cheddar & butter for guilt-free snacking.

Click to Learn More

Photo credit: Why Snacks

Gluten Free Cheese Qwackers Crackers

Providing Yummy Gluten Free Snacks for Families on the Go! Gluten Free Crackers Shaped Like a Duck. A great alternative to Goldfish crackers. Allergens: Milk

Visit the Qwackers Website

Simple Mills Farmhouse Cheddar Almond Flour Crackers

A better for you version of your favorite cheesy childhood crackers, with taste & nutrition that adults and kids adore. Allergens: Almonds, Milk

Visit the Simple Mills Website

Simple Mills Cheddar Pop-Mmms

The perfectly poppable, bite sized, cheesy, light & airy baked snack crackers, made with wholesome veggies. Grain Free. Certified gluten free by GFCO. Allergens: Milk. NUT FREE

Visit the Simple Mills Website

Cheddar Star Puffed Crackers- Top 9 Allergen Free

MadeGood Cheddar Star Puffed Crackers offer delightful crunch and savory flavor in every star-shaped bite. Vegan, non-GMO and dairy-free. Top 9 allergen free. Contains oats

Visit the Made Good Website

Original Mates – Cheddar Cheese

Rich gouda flavor and a light cracker crunch; it’s basically a cheeseboard you can eat by the handful! Made with real cheese, Mates are the perfect any-time snack to satisfy your cravings. Certified gluten free through GFCO. (Other flavors include Caramelized Onion, Rosemary Garlic and Spicy Jalapeño) Allergen: Milk

Vist the 34 Degrees Website

Nut-Thins® Cheddar Cheese Gluten Free Crackers | Blue Diamond

“Once you’ve tasted our Nut-Thins® Cheddar Cheese Gluten-Free Crackers you’ll come back for more. Try Blue Diamond’s Cheddar Cheese flavor Nut-Thins® today for a guilt- and gluten-free snack.” Certified Gluten Free by GFCO Allergens: Almond, Milk, Soy Lecithin

Visit the Nut Thins Website

Good Thins Three Cheese and Rice Crackers.

Crafted with rice and cheese, these snack crackers are made with delicious goodness. Certified gluten free by GFCO. Allergens: Milk

Visit the Good Thins Website

Original Flavor

ParmCrisps^® are made from 100% cheese, oven-baked in small batches, and seasoned with our special selection of all-natural spices for peak flavor. Certified Gluten Free through GFCO. Grain Free. Allergens: Contains Milk

Visit the Parm Crisps Website

Whisps Cheddar Cheese Crisps

Whisps 100% real cheddar cheese crisps pair perfectly with dips, soups, salads, are school-safe and elevate your appetizer plate. They are gluten-free and an excellent source of calcium. Not certified gluten free. Grain Free. Allergens: Milk

Visit the Whisps Website

Cheddar Believe It – Cheddar Cheese Snack | Moon Cheese

Our #1 selling flavor, Cheddar Believe It is everything you want from a cheese snack. It’s crunchy, all natural, and, most importantly, pure cheese. Bears Beyond Celiac Certification Seal on back of packaging. Grain Free. Allergens: Milk

Visit the Moon Cheese Website

Sonoma Creamery Cheddar Cheese Crisps

Sonoma Creamery Cheddar Cheese Crisps are baked, never fried crunchy Real Cheese Snacks. Our Crisps provide a gluten-free, low carb alternative to your morning routine or afternoon snack. NOT grain free. Certified Gluten Free by GFCO. Allergens: Milk

Visit the Sonoma Creamery Website

Fit Joy Vegan Cheezy White Cheddar Cracker Rounds

These Fit Joy crackers are dairy-free, free from the top 9 allergens, grain-free, and non-GMO. Also available in Pepper Jack flavor.

Visit the Fit Joy Website

Mary’s Gone Cheeze Vegan Cheddar Flavor Crackers

Verifiably vegan, outrageously organic, naturally non-GMO and genuinely gluten-free. Contains none of the top 9 allergens, but made in a facility where soy and sesame are present. Certified gluten free by GFCO. Oat free

Visit the Mary’s Gone Crackers Website

From the Ground Up Vegan Cauliflower Cheese Crackers.

Vegan, Non-GMO and Certified Gluten Free through GFCO. Allergens: Contains Oats

Visit the From The Ground Up Website

Cadootz Gluten Free Cheddar Crackers

These gluten free cheese crackers are certified gluten free and made with oat flour.

Check out this recipe

Photo credit: cadootz. com

Gluten Free Cheez-Its

h childhood favorite, in gluten free form. Certified gluten free. CONTAINS MILK AND SOY INGREDIENTS. MAY CONTAIN ALMONDS.

Check out this recipe

Gluten Free Cheez-Its Recipe from Fearless Dining

If you have missed Cheez Its since going gluten free, this is the best gluten free cheese cracker recipe. You only need 7 ingredients! Follow the easy directions to make these kid friendly bite-sized crackers.

Check out this recipe

Vegan Gluten Free Cheez-Its Recipe from Gutsy Baker

The recipe is customizable to your diet and what you have on hand. And they are just 4 ingredients (including salt)!

Check out this recipe

Other Gluten Free Cracker Recipes

Looking for other gluten free cracker recipes? I highly recommend my recipe for gluten free graham crackers, which is egg free. Missing Ritz Crackers? Try this recipe for homemade Gluten Free Crackers from Chef Alina.

More Gluten Free Products to Try

Looking for more gluten free snacks to try? Check out my list of Top 9 Allergen Free Snacks.

The post Gluten Free Cheese Crackers – Brands & Recipes appeared first on MI Gluten Free Gal.

Gluten Free Eaters Not Welcome at the Party

The above photo is from a Super Bowl commercial a few years ago, which made fun of those who need to eat gluten free. Luckily, the ad was pulled relatively quickly, but the damage had been done. Seen by adults and children, it reinforced society’s perception that we’re “difficult.”

Children as Targets of Food Allergy Bullying

As I watched this ad, my mind thought of the more than 5 million kids in our country living with food allergies. Did you know a third of them, almost 2 million children, experience harassment every year because they have a dietary restriction?

Others taunt, threat, harass and ostracize these children because their bodies perceive food as a threat. Because the physical reaction is so serious, food allergies and Celiac Disease qualify as a disability, protected by law.

But It’s Just a Joke….

I see people comment this all the time. They say “no one would do this in real life.” However, there are plenty of stories where people HAVE done just that.

• Restaurant Owner Sent to Jail Over Food Allergy Negligence
• Family wins $200,000 Lawsuit Against Restaurant who Neglectfully Fed Her Allergen
• High School Football Player Changes Schools After Peanut Allergy Harassment
• College Student Pleads Guilty in Smearing Peanut Butter on Allergic Student
• Teen Charged with Assault After Attacking Teen with Food Allergen
• Three Teens Charged with Assault After Attacking Classmate with Pineapple Allergy
• London Child with Dairy Allergy Dies After Classmates Taunt Him with Cheese

I want people to remember that there 20 MILLION people in the US live with food allergies. While you may not have a family member who lives with a food allergen, it’s possible that a friend of yours does. Making rude jokes about this topic shows you’re not a safe space for their family.

Also, a reminder that your kids are watching and hearing the content you consume on social media. You may hear a joke like this and not say anything. But children, whose brains aren’t fully formed and don’t understand certain consequences, are watching. If you think it’s funny, it’s more likely they’ll treat another kid this way.

DYK Celiac Disease Is Covered Under Disability Law

Think that’s a stretch? Not really. A disability is defined as “physical or mental issue that seriously limits one or more major life activities.” When you have a peanut allergy and its presence affects your ability to breathe, I’d say that limits a major life activity.

Celiac Disease is considered one as well. When consuming gluten can affect your mental status, your hormone and nutrient levels, that is definitely a limit to daily function. Not to mention being able to go a day without constantly being on a toilet, it affects being able to hold down a job, etc.

Food Allergy Bullying is Not as Rare as you Think

When I first heard of food allergy bullying, I imagined it had to be rare. How could anyone do such a thing? To this day, I’m still affected by the story of Eleanor Garrow’s son, which I read in 2013 in Gluten Free and More Magazine.

Her son, who has a peanut allergy, was attacked by another child and intentionally smeared with peanut butter. This could have been a deadly experience. Per the article, he struggled emotionally for quite a while due to that abuse.

FARE, short for Food Allergy Research and Education, reported that “about one-third of kids with food allergies report that they have been bullied because of their allergies.” In a “2010 study by doctors at Mount Sinai Medical Center, 21% of kids reported being bullied by a teacher or other school staff.”

Sadly, it’s not just kids that are the perpetrators of food allergy bullying. There are stories of parents of non-allergic kids threatening to coat the backpack of child with their deadly allergy. In another story, a parent encouraged their child to walk down the hall, smearing peanut butter on the walls, after the school declared themselves to be a peanut-free zone.

Adults Are Not Immune from Being Bullied about Their Dietary Restrictions

Adults are not immune from these threats either. A young woman with Celiac Disease shared in a Facebook group that her “friends” retaliated against her by covering her car and property in wheat flour. I can’t even fathom someone doing this.

And of course, those of us with Celiac Disease have recently been the topic of jokes in the entertainment industry. It has all added to the growing lack of compassion for those with food intolerances.

What can we do to turn the tide? How do we stop bullying and grow compassion about the issue of food allergy bullying?

4 Things You Can Do to Help Counteract Food Allergy Bullying

Grow Awareness of Food Allergy Bullying

First we should start by explaining how serious food allergies and Celiac Disease are. FARE has created a PSA that can be shown on television and in schools. It’s also important to train teachers how to address the issue appropriately. Sometimes teachers use words to address why certain foods are not allowed in a classroom that actually increase the possibility of bullying. This article from FAACT also includes resources.

Convince Children to Tell You When it Happens

Food allergy bullying doesn’t get much attention because children are afraid to speak up. They fear if they address the issue it will draw attention to themselves or make the bullies angry. However, the only way to fix the situation is for your student to tell you. Constantly communicate with your child about how things are going. If they suddenly seem disinterested in school, this may be part of the reason why.

Stand Up For One Another – Get a Buddy

Many times the “positive” light in food allergy bullying stories is when a friend stood up for a food allergic child. Like in Charlotte’s story, having a friend keep an eye on their lunch box if they get up to use the bathroom can make a huge different. Standing up for one another also applies to us as adults. We need to be willing to “set others parents straight” when their speech can encourage misunderstandings or taking food allergies flippantly.

Know Your Rights

Your child qualifies for a 504 plan, as food allergies and Celiac Disease are covered as a disability,. A 504 plan is a binding legal document between parents and the school. It outlines how your child will be protected while at school.

What About Legal Representation?

Personally, I’m not usually one to seek out financial compensation. However, some acts are especially egregious, and legal representation may be needed.

I am a huge fan of Mary Vargas of Stein & Vargas. She’s handled large cases, and their offices are in DC and Maryland. Notably, she represented the child at Williamsburg, who faced discrimination because of his Celiac Disease. Buckfire Law in Michigan represents clients with Food Allergy claims.

As time goes by, it seems that society gets uglier and uglier. The greatest chance we have to make a positive change is to spread awareness and foster compassion. People pick on those that they feel are weaker. Let’s show them that we’re stronger, together.

Have you or your child been the victim of food allergy bullying? How have you handled the situation? Please share your strategies below so we can help each other.

Originally Published January 2017

The post Food Allergy Bullying and How to Stop It appeared first on MI Gluten Free Gal.

These gluten free playdough brands are perfect for classroom use. In fact, you can list it as a required accommodation under a student’s Section 504 plan.

Store Bought Gluten Free Playdough

Aroma Dough Gluten Free Modeling Dough

A parent messaged me, asking about gluten free playdough products. Moms & dads who follow our Gluten Free Michigan Kids Camp Facebook page quickly recommended Aroma Dough. They offer scented and unscented doughs, all which contain none of the top 8 allergens. Created by a California mother whose child has Celiac Disease, it sounds like a great small business.

How to Order – Directly from Aroma Dough website

Colorations Wheat & Gluten Free Dough

Colorations produces both a wheat based and a  wheat & gluten free play dough. The gluten free playdough “does not contain peanuts / tree nuts, dairy, casein or egg. Additinally it does not contain corn starch, or latex.” Made in Great Britain, it comes in a 5 1/2 lb container, of 8 colors.

How to order – Amazon and Discount School Supply

Crayola Model Magic

Quite a few parents, including Jereann from Celiac Mama, stated they purchase Model Magic for their kids. Please don’t confuse this with the Crayola dough, which DOES contain gluten. Crayola does state that they produce Model Magic and their dough on the same machinery, but clean machines between each run. Made in the USA.

How to Order – Amazon, Target, and Michael’s

Whoa Dough

A good friend shared this product with me, available at Target. Whoa Dough looks a bit stretchier than Play Doh, more like a soft putty. All 8 colors come in one resealable package, making them easier to find and put away. Whoa Dough is also Peanut Free, Soy Free, Egg Free, and Milk Free. It is made in China.

**PLEASE see note in the comments below. Some parents do not recommend this product.

Where to order – Target

Kinetic Sand

My friend Joy shared about this product, stating her daughter loved it. Fellow blogger Brianna Wolin, who was diagnosed with Celiac Disease at a young age, stated she played with magic sand and liked it much more than Play Doh. The Spin Master Kinetic Sand brand states their product “easily cleans up and is wheat, gluten and casein free.” Made in Sweden.

How to order – Amazon and Michael’s

Mad Mattr

One mom shared that her children loved Mad Mattr. She also stated “The small packages are perfect for school and they don’t dry out!”  Websites state this product is wheat, gluten and casein free, and does not dry out like PlayDoh. A reply to a question on Amazon stated it contains no soy. Another statement said this product is similar to Magic Sand. Made in Sweden.

How to order – Amazon and School Specialty

MODO Simply Gluten Free Dough

“MODO is more than just dough — each box features three vibrantly colored gluten-free doughs. They are stored in sturdy reusable 6-oz containers with lids, with the added play features of plastic textured stamping bands with four patterns each and a wooden sculpting tool.

MODO encourages parent/child bonding through simple exploration and play, focusing on tactile learning and development. MODO’s vibrantly-colored formula is made with simple non-toxic, BPA-free, phthalate-free, and fragrance-free ingredients. MODO’s vibrant colors, clean scents, and cool tools will inspire young minds to create. Squish, play, learn, repeat.”

*Note- MODO makes gluten free and non-gluten free doughs. Make sure to look for the package that says gluten free.

How to order – Rainbow Resource Center

Homemade Gluten Free Playdough Recipes

Of course, one can also make their own homemade gluten free playdough. Many recipes exist on the internet, but I’m listing a few to give you some ideas.

• Gluten Free Playdough Recipe from Eat at Our Table
• Grain Free and Gluten Free Playdough Recipe from Against All Grain
• Allergy Free Playdough Recipes from AAAAI
• 2 Ingredient Silky Smooth Playdough from Our Best Bites
• Edible Gluten Free No Cook Playdough from Fun at Home with Kids

Other Back to School Resources

Please know that Play Doh brand is not the only school product that may contain wheat or gluten. I find this list of Potential Food Allergens in Craft Supplies from Kids with Food Allergies to be very helpful. Celiac Mama also created a list of Art Supplies that Contain Gluten.

Of course, we also need to work about snacks and cross contact in the classroom. I love these Top 8 Allergen Free Snacks.

What Back to School Resources are you looking for? Leave a comment below, and I’ll try to help you find it! 

**This post contains Amazon affiliate links. Purchases made through those links, help support this blog with no extra expense to you. Thank you for your continued support!**

First Published August 2020

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Michigan Face-to-Face Gluten Free Support Groups

Kalamazoo Area Support Group –

Monthly support group meetings: 2nd Tuesday of each month at 7pm
They meet at The Cellar at 328 which is the Jaqua Realtors Building.

The address is 328 West Milham Ave, Portage MI 49024.

Find more information at their website. https://www.glutenfreekzoo.org

Jackson Area Support Group

Meets last Monday of the month. They meet from 12-1 pm at the The Arbor Church. The address is 120 E Main St, Spring Arbor MI 49283. Find more information about the South Central Michigan Support Group on the National Celiac Association website. 

Muskegon Support Group
They usually meet the 4th Tuesday of the month, May through August. The May meeting is a Central Park in Grand Haven. Other meetings are usually at Pomona Park in Fruitport, MI.
Meetings are outdoors, so bring a chair. They meet from 6:30- 8 pm.
You can contact them via email for more information.  glutenfree_muskegonarea@yahoo.com

Michigan Based Online Gluten Free Support Groups

• Greater Lansing area Online Support Group
• Greater Grand Rapids Gluten Free Support Group (Lots of great restaurant recommendations!)
• Gluten Free in Metro Detroit FB group
• Celiac Disease in Southeast Michigan
• Gluten Free Ann Arbor Group
• Gluten Free Moms  in O-Town FB Group
• Traverse City Celiac and Gluten Free Support Group
• Gluten Free in Northern Michigan
• Muskegon Area Celiac Support Group
• Kalamazoo Area Celiac Support Group
• Gluten Free Michigan
• Living Gluten Free in Michigan

United States Gluten Free Facebook Groups

• Gluten Free Living and Recipe Share FB Group (United States FB group)
• Gluten Free Recipe Sharing (US Group)
• Gluten Free Aldi US Finds (US Group)
• Gluten Free Costco Finds (US Group)
• Parents of Gluten Free & Celiac Kids (US Group)
• Gluten Free on the Road – Great for travel dining recommendations (US Group)

In-Person Gluten Free Events – US and Canada

• New England Gluten Free Expos –
  • Connecticut, Philadelphia, Massachusetts, New Jersey
  • February, July, September, November (respectively)
• G Free Fest – Rhode Island (March)
• Mai Fest – Lakefront Brewery – Milwaukee, Wisconsin (May)
• Mad Fest – Madison, Wisconsin (June)
• Gluten Free Farmers Market – Denver (Multiple Summer Dates)
  • 2nd Saturday of the Month June – October
• Michigan Gluten Free Kids Camp – August
• My Gluten Free World Expo – Sandy, Utah
• Gluten Never Ever Expo – Merrimack, NH
• Nationwide Children’s Hospital Celiac Disease Center Conference 
  • Annually in late October or November
  • While this conference is geared towards parents of children with Celiac Disease, there are very informative presentations.
• National Celiac Association Events Calendar
• Beyond Celiac Events Calendar

Canadian Events

• Gluten Free Garage – Toronto, Canada (May)
• Gluten Free Expo – Vancouver & Calgary, Canada (September) (Calgary in March 2027)
• Gluten Free Goodness Expo – Ancaster, Canada (November)

National & International Celiac Disease Resources and Organizations

• National Celiac Association They offer a free monthly online newsletter. Paid members receive a magazine every quarter. They also hold conferences on the east coast.
• Beyond Celiac is another Celiac Disease advocacy group. They also offer a free newsletter. They were previously called the National Foundation for Celiac Awareness.
• Gluten Intolerance Group – The Gluten Intolerance Group has a free membership and sends an online magazine. They have support groups in some states, but nothing here in Michigan. This organization operates the GFCO gluten-free certification logo. (The GF inside a circle.) They perform research, publish articles and are a force of advocacy in our community.
• The Celiac Disease Foundation shares research on their website and through their free newsletter. They have a conference in California every year as well.
• Canadian Celiac Association – The main organization offering Celiac Disease resources in Canada.
• Coeliac UK – The main Celiac Disease organization for the United Kingdom.

Doctors and Dietitians I Trust

• Dr Ritu Verma and Staff at Univesity of Chicago Celiac Disease Center. 
• Dr Joseph Murray at Mayo Clinic
• Dr Alessio Fasano at The Center for Celiac Research and Treatment, Boston
• Maureen Leonard at The Center for Celiac Research and Treatment, Boston
• Gluten Free Watchdog
  • Follow her for latest research and updates on gluten-free product labeling. She is not tied to any organization, but is an independent advocate. She truly has the best interest of this community at heart.
• Lori Welstead, R.D. at University of Chicago Celiac Disease Center
• Melinda Dennis, R.D, dietitian connected with the National Celiac Association
• Amy Keller R.D.

Phone Apps

• Find Me Gluten Free– The website and phone app is a lifesaver when you are traveling. On their website, you can plug in the zip code of a city that you are visiting and see a display of gluten free restaurants, bakeries, and stores in the area. When you are on your cell phone, the app uses your GPS location to show locations nearest you.
  • A WORD OF CAUTION. This app is meant to be a “starting off” point. Use it for recommendations, but always ask questions about ingredients and food preperation before dining.
  • Traveling and looking for a local resource? Check out my Gluten Free Bloggers of the United States post. 

A Word Of Caution on Grocery Store Scanner Apps

In general, I do not advise relying on them. Product labels and ingredients often change. Those apps rely on input by a few persons, and mistakes can be made. Too often in Facebook groups I see people ask why the scanner marked something unsafe, when it is in fact gluten free. You are better off doing your research and being an informed shopper.

Warning About “Explore Michigan”

I have seen an influx of posts about gluten free options in Michigan on the Explore Michigan page. THIS IS AN AI WEBSITE. It’s a scam. The owners are based in Bosnia, not the US. Their articles are full of incorrect restaurant information and wrong photos. I daresay their list of writers is also made up. See my Facebook post to learn more.

Be Careful Where You Get Your Information

I try to keep things positive, and rarely try to say where NOT to get your information from. However, there is plenty of misinformation on the internet, and it leads to confusion and anxiety. There are a few things I want to make sure you’re aware of.

1. A “health coach” is not the same thing as a registered dietitian. Even those who use the term “nutritionist” are not necessarily a registered dietitian. A registered dietitian has gone through many years of college, training, and independent cerification to show they know important material.
2. See a board certified gastroenterologist. See the person who has studied and specialized in the disease you are trying to alleviate. I wouldn’t go to an eye doctor to perform a hysterecomy. So please get your information from those who have spent the extra years of work studying it.
3. Go for information, not manipulation. Be careful of headlines or articles that seem too good to be true. In addition, be cautious of sites that play on your emotions and lead you to feel fearful or consisently angry. Be wary of sites that use scare tactics such as “Click here for information others aren’t telling you.”
4. Please stay away from Gluten Free Society. Org. It is run by “Dr. Osborne,” but his personal website specifically states (in the small print) “Dr. Osborne is not a medical doctor. He does not treat or diagnose disease. Dr. Osborne is licensed with the Pastoral Medical Association.” (Read this NPR article which explains the concerns around the Pastoral Medical Association.) Mr. Osborne also falsely states on his website that corn, rice teff, milllet and buckwheat are not gluten free.
5. For more on avoiding misinformation, see my post on how to Navigate the Gluten Free Internet.

To make a long story short, you are NOT ALONE on this journey! We are all here to help. What other Celiac Disease resources do you rely on? Please mention them in the comments below, and I may end up adding them to my post!

Originally Published Nov 2012

The post Celiac Disease Resources in Michigan and Beyond appeared first on MI Gluten Free Gal.

Who Plays at LMCU Ballpark?

LMCU Ballpark is home to the West Michigan Whitecaps. Started in 1994, this Midwest League team is a High-A Affiliate of the Detroit Tigers. “The Whitecaps were affiliated with the Oakland Athletics before they joined the Tigers’ farm system in 1997.” (Wikipedia)

“Before the 2002 season [LMCU Ballpark] was known as Old Kent Park; the name was changed when the park’s title sponsor, Old Kent Bank, was purchased by Fifth Third Bank. Before the 2021 season, the Lake Michigan Credit Union renamed the venue “LMCU Ballpark”. (Wikipedia)

Where is LMCU Ballpark?

LMCU Ballpark is located in Comstock Park, MI, approximately 7 miles north of downtown Grand Rapids. It sits just west of the Grand River. It’s just off US 131, at exit 91.

LMCU Ballpark is one of many sporting venues in Grand Rapids, Michigan. The Grand Rapids Griffins are the AHL affiliate of the Detroit Red Wings and play at Van Andel Arena. Van Andel Arena is also home to the Grand Rapids Gold basketball team, which is an affiliate of the Denver Nuggets.

How Much are Tickets?

Ticket prices range from $14-$50 for single game tickets. Visit their website to learn more about prices for Full & Half Season Ticket Prices, and the bonuses that come with them.

What Gluten Free Food is Available at LMCU Ballpark?

The staff at LMCU Ballpark was kind enough to send me the above PDF. I’ll break down the options to you, by type of food.

Hot Dogs and Sandwiches (Gluten Free Buns Available)

• Big Beef Sandwich
• Bratwurst
• Grilled Chicken
• Hot Dog
• Polish Power Hitter
• Pulled Chicken Sandwich
• Pulled Pork Sandwich
• Rice Bowls
• SPAM Hot Dog

Snacks

• Caramel Corn
• Cotton Candy
• Great Lakes Chips
• Popcorn
• Shelled Salted Peanuts

Sweets

• Dippin Dots
• Hard Serve Ice Cream (some flavors)
• Lemon Icee Frozen Lemonade
• Soft Serve Ice Cream (see PDF for GF toppings)
• Sweet Street Gluten Free Brownie

Danielle O’Connor, Food & Beverage Operations Manager for the West Michigan White Caps, shared the following information with me.

The way we approach gluten free items on the menu, is whether the whole menu item can be considered gluten free. For example, our tortilla chips are gluten free. However, the cheese contains wheat, so we don’t list tortilla chips under gluten free because it’s not an item that can be purchased without the cheese. The gluten free menu focuses on items, while our full allergy menu focuses on ingredients.

Please Tell Me More about Your Gluten Free Buns

Gluten free buns are kept in their packaging until given to the fan, and handled with new gloves. Depending on the capability of the specific area, some are kept in a warmer and some are left out to thaw. We have our gluten free buns available at all locations where the item is served, not just specific concession stands.

What Steps Does LMCU Ballpark Take to Prevent Cross Contact?

We always ask guests to state that they need to order a gluten free items. We do keep our gluten free items in a separate spot, but we also want to make sure it’s fully being taken seriously and there’s no risk of miscommunication between food runners and cashier staff. Staff are always willing to change gloves and use separate utensils.

We cook hot dogs and bratwursts separately from our hamburger patties, which contain wheat. Quesadillas are made on a panini press and not the flat top, so there is no cross contact there.

What About Those With Peanut Allergies?

They offer nut free games in May! Danielle O’Connor shared the following with me.

One of the nut free games is one of our school day games. So many kids take field trips and I love how we at LMCU Ballpark can provide a safe environment for the kiddos to come and enjoy! The week leading up to the peanut free games, we do a deep clean of the whole ballpark like the seating bowl and everything

Does LMCU Ballpark Have Gluten Free Beer?

Yes, LMCU Ballpark serves New Grist Gluten Free Beer. In addition, they also sell Long Drink Seltzer, Nutrl Vodka Seltzer, White Claw Seltzers, and hard cider.

*Can I Bring my Own Gluten Free Food To a Whitecaps Game?

The LMCU Ballpark Food Service Policy states “No outside food or beverage will be allowed LMCU Ballpark with the exception of pre-determined items agreed on by both parties.”

When I spoke with staff, they told me “We do allow fans to bring in their own food for medical, religious, and otherwise dietary needs.”

Where Should I Park If Going To a Whitecaps Game?

LMCU Ballpark offers parking on premises. They charge $10 per car. Their website states “Parking lots will open 2.5 hours prior to first pitch/ event start. All lots are first come first serve. (Fridays open 3.5 hours prior to first pitch).”

What Other Gluten Free Dining Options are Near LMCU Ballpark?

The ballpark is located in Comstock Park, and Amore Trattoria is only 4 miles west of the ballpark. Drive 4 miles to the east to to Belmont, MI and dine at Archival Brewing, which has a dedicated fryer!

Grand Rapids has many amazing gluten free dining options, including a few dedicated gluten free dining establishments. Papa Chops, which serves burgers, fries, pizza and more, is approximately 20 minutes from the ballpark. Fika, owned by the same people as Rise Authentic Baking, is 100% gluten free and vegan. It’s a 10 minute drive from the stadium.

Craving something sweet after the game? You’re only 5 miles away from Frosty Boy on Plainfield, which is one of the best places in Michigan to get GF ice cream. If you need dairy free ice cream, take a 20 minute drive to Tastefull Vegan Ice Cream. Everything there is gluten free and dairy free.

Gluten Free Options at Other Michigan Sport Venues

Curious about other sports teams? Check out my article about attending a Detroit Tigers game. Hopefully this fall I’ll be able to add articles about Little Caesars Arena & Ford Field

Interested in more Minor League Baseball teams in Michigan? Dow Diamond in Midland, home of the Great Lakes Loons, has many gluten free options. Jackson Field, home of the Lansing Lugnuts, also has many gluten free options.

What other Michigan sports venues would you like to learn about?

LMCU Ballpark Address and Contact Information

LMCU Ballpark

4500 West River Drive

Comstock Park, MI 49321

Website | Facebook | Instagram

Phone: 616-784-4131

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