Comments on: My Celiac Story – From Anemia to Recovery https://miglutenfreegal.com/my-celiac-story/ Gluten-Free Living and Celiac Disease Awareness Sun, 30 Mar 2025 01:28:23 +0000 hourly 1 By: Margaret Clegg https://miglutenfreegal.com/my-celiac-story/#comment-10490 Sun, 05 Dec 2021 13:51:18 +0000 http://miglutenfreegal.com/2013/05/07/my-celiac-story/#comment-10490 In reply to Wayne.

I would recommend trying to find an in person or online gluten free group specific to your area. They will be able to beter help you find groceries.

]]> By: Wayne https://miglutenfreegal.com/my-celiac-story/#comment-10465 Sat, 04 Dec 2021 01:42:58 +0000 http://miglutenfreegal.com/2013/05/07/my-celiac-story/#comment-10465 Newly diagnosed in September, now having food intolerence. Hearing positive stories helps a lot. Anyone know how to heal leaky gut? Just started happening this month. Anyone know a place I can get gluten free food?

]]> By: Margaret Clegg https://miglutenfreegal.com/my-celiac-story/#comment-8095 Wed, 15 Sep 2021 13:50:29 +0000 http://miglutenfreegal.com/2013/05/07/my-celiac-story/#comment-8095 In reply to Denise Searcy.

That’s one amazing gyneologist! So glad he helped you get diagnosed.
And yes, Celiac Disease is genetic. The risk of developing Celiac Disease when a family member already has it is 1/22, vs 1/100 in the general population. My father and grandmother both had Celiac Disease.

]]> By: Denise Searcy https://miglutenfreegal.com/my-celiac-story/#comment-8088 Tue, 14 Sep 2021 18:00:21 +0000 http://miglutenfreegal.com/2013/05/07/my-celiac-story/#comment-8088 My diagnosis happened for me not being outwardly sick. And strangely my gynecologist is the doctor who followed up on weight loss and a few years of early age low bone density. So I was sent for the Celiac panel of bloodwork. That showed my vitamin D level down to 3! Yikes! Now he refers me to get an Endoscopy. That confirmed the Villi completely flat. So Malabsorption of nutrient , vitamin, etc. gave me a diagnosis of Celiac. It’s been an eleven year journey of gluten free diet and I am maintaining a healthy life. Following my diagnosis, one year later three of my grandchildren were diagnosed, all in one family. Fortunately, they did not have to go through their growing years being sick before being diagnosed. They all have learned and grown well with a gluten free diet. Their mother, my daughter not Celiac, is a guru on keeping up with the GF diet and is a go to person for many of us in the family. I also have cousins diagnosed, so I believe this is a genetic disease.
Stay healthy. Denise

]]> By: Margaret Clegg https://miglutenfreegal.com/my-celiac-story/#comment-7484 Wed, 26 May 2021 01:57:30 +0000 http://miglutenfreegal.com/2013/05/07/my-celiac-story/#comment-7484 In reply to Tizziana.

thank you for sharing your story. Sadly, I’ve heard too many stories of people being near death prior to getting a diagnosis. This should not be so. Doctors should be more aware and screen for it more frequently.

]]> By: Tizziana https://miglutenfreegal.com/my-celiac-story/#comment-7476 Tue, 25 May 2021 01:33:19 +0000 http://miglutenfreegal.com/2013/05/07/my-celiac-story/#comment-7476 Thank you for sharing your story. It’s quite interesting this disease. I feel it’s one of the most difficult diseases to be diagnosed. I experienced symptoms for many years before being properly diagnosed. Anemia was a big headache in my life. I almost die and the doctors had to “bring me back “. A very scary time for sure. Now, I have more symptoms… too long to list here!
I appreciate your posts, guidance and kindness. Thank you for sharing your story and for reading mine.

]]> By: Margaret Clegg https://miglutenfreegal.com/my-celiac-story/#comment-7322 Fri, 09 Apr 2021 15:39:49 +0000 http://miglutenfreegal.com/2013/05/07/my-celiac-story/#comment-7322 In reply to Jennifer.

Dear Jennifer,
Welcome to the Celiac Disease community. (Although “welcome” may seem like a weird word to say.) Although others in your family may not be diagnosed with Celiac Disease, it’s still possible they have it and are unaware of their symptoms. All of your 1st degree relatives (parents, siblings, children) should be screened. I’m glad that my blog post has been of help to you. Please know you’re not alone, and feel free to email / message me any time. 🙂

]]> By: Jennifer https://miglutenfreegal.com/my-celiac-story/#comment-7310 Tue, 06 Apr 2021 16:16:42 +0000 http://miglutenfreegal.com/2013/05/07/my-celiac-story/#comment-7310 I was just diagnosed with celiac disease 5 weeks ago, at 47. I always needed a nap after I ate, felt bloated after most meals, had seriously embarrassing bathroom issues for over 7 years, and always felt run down. My former primary physician did not seem to care, just told me to increase my fiber, so I did and felt worse. I changed my primary and was immediately referred to a gastrointestinal doctor. My blood work came back normal so I was thinking ibsd, oh well. After the upper scope and the colonoscopy, I got the results, celiac disease and microbial colitis. I’m in the 10% that do not show in blood work. To my knowledge, after asking around on both sides of my family, I’m the only one with celiac disease. I’m still craving bread and getting moody, but doing alright. Reading your journey is helping me embrace this disease. Thank you.

]]> By: Vikki https://miglutenfreegal.com/my-celiac-story/#comment-7306 Mon, 05 Apr 2021 16:57:04 +0000 http://miglutenfreegal.com/2013/05/07/my-celiac-story/#comment-7306 I had issues all my life and was diagnosed with endometriosis after my second child. I numberous surgeries to remove large cysts and finally after 3 surgeries in 5 years a hysterectomy at 43. The stomach issues continued as well as low iron, vitamin D and b12. I was always exhausted! My Daughter complained about her tummy off and on but when my Daughter was 13 she got really bad becoming a vegetarian than vegan. She could barely function the next few months. We took her doctor and specialist appointments. She continued to feel terrible. We finally saw a Natropath who was our saving Grace! My Daughter started a gf diet and I did it with her. We both started to feel better. She was also severely anemic, low b12 and vitamin D like me. Our family doctor than suggested getting a celiac blood test that came back negative and now we know that it was due to a gf diet. We have thought about trying to eat gluten again in order to get tested for Celiac but it would be hard. We both still suffer with constipation yet we eat a very healthy diet! Thanks for sharing your story!

]]> By: Margaret Clegg https://miglutenfreegal.com/my-celiac-story/#comment-3097 Thu, 09 May 2019 16:34:10 +0000 http://miglutenfreegal.com/2013/05/07/my-celiac-story/#comment-3097 In reply to Oumelkheir.

So glad that you were able to finally get a diagnosis!

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