Comments on: Michigan Medicine Celiac Disease Program

By: Margaret Clegg

Margaret Clegg — Sat, 27 Jan 2024 13:41:59 +0000

In reply to Laurie Cook. Thank you for this suggestion! It's so helpful to know names of reputable doctors who understand Celiac Disease.

By: Laurie Cook

Laurie Cook — Fri, 26 Jan 2024 20:55:47 +0000

Dr Jennifer Mitsuya pediatric Gastro out of Beaumont (Corewell) Troy and Royal Oak.

By: Margaret Clegg

Margaret Clegg — Fri, 26 Jan 2024 20:22:20 +0000

In reply to Shauna Federico. Love hearing this feedback. I'm so glad to hear that she was able to get you connected with a dietitian right away. It definitely gives parents peace of mind when their kids receive excellent care.

By: Margaret Clegg

Margaret Clegg — Fri, 26 Jan 2024 20:20:21 +0000

In reply to Caroline. Dear Caroline, thank you so much for this excellent feedback. Being treated as a "whole person" makes a huge difference.

By: Caroline

Caroline — Fri, 26 Jan 2024 20:17:43 +0000

Dr. Eswaran and Dr. Riehl at University of Michigan have been godsends. I mean it quite literally when I say that they saved my life. After being with two GI doctors before U of M and doing poorly after my diagnosis, transferring my care there was the best choice I ever made. Their knowledge surpassed my prior two doctors combined, and they really take the time to look at the whole picture of you as a patient. If you’re contemplating being seen there, don’t hesitate! The wait time is truly awful to get established, but ask to be put on a cancellation list and call periodically for openings. You’ll be in excellent hands.

By: Shauna Federico

Shauna Federico — Fri, 26 Jan 2024 20:09:05 +0000

I was diagnosed with celiac 9 years ago and my 12 year old son was just diagnosed last month. Dr. Lee at UM did his EGD. She is fabulous. I’m an NP and am pretty picky about healthcare providers. She was super appropriate and kind and got us looped into a visit with the dietitian right away. It’s been a vastly different experience for my son than what I had when I was diagnosed and I will be eternally grateful.

By: Margaret Clegg

Margaret Clegg — Fri, 15 Apr 2022 13:15:30 +0000

In reply to Nicole Spaim.

September is definitely a long time to wait. Sorry to hear that they can’t get you in sooner. For a gluten challenge, University of Chicago says you only need to eat 1/2 slice of bread or a cracker each day. Prior to blood testing they recommend 12 weeks of eating gluten.
Prior to an endoscopic biopsy they recommend 2 weeks of eating gluten. For now, I’d continue eating gluten until your biposy.

By: Nicole Spaim

Nicole Spaim — Wed, 13 Apr 2022 23:59:56 +0000

I am in the process of being diagnosed. I had a weak positive ttG IgA but I only consumed gluten probably 60-75% of the days leading up to blood work. I have two children with celiac disease so we keep our house 100% gluten free. I wanted to get in with this practice but when I tried to schedule the first consultation with them today they don’t have any openings until Sept 22. So now I’m not sure what to do…. Keep eating gluten until then or stop and then start again a month before. I have zero GI symptoms but a few other things going on that could be celiac related. My eyesight seems like it is changing and changing quickly – but I’m over 40 so that may just be age related. I’ve been getting headaches but maybe due to the glasses I’ve been wearing so I can see my computer screen. And I’m seeing a cardiologist next month for some tachycardia. Just finished a 30 day event monitor. I’ve read celiac can cause some heart issues but not sure about specifics with that. And I’m Vitamin D deficient. Taking a supplement but guessing it won’t absorb until I stop eating gluten and intestines heal.

By: Margaret Clegg

Margaret Clegg — Sun, 07 Jun 2020 23:38:40 +0000

In reply to Donna. Dear Donna, Tri County Celiac Support Group meets in Farmington Hills and could be a great resource for you.

By: Donna

Donna — Mon, 01 Jun 2020 12:23:24 +0000

I have a GI doctor in the program. Luckily, I don’t have any terrible gut issues that come with celiac disease. Of course, a GI doctor wants to test, test, test. I wish they had internists for celiacs that would look beyond the gut to the other numerous other parts of the body. My internist often has to be reminded I have celiac disease so it seems disconnected. I’ve had labs that were off due to the parathyroid and anemia. I had to do a lot of personal research to understand the issues. I don’t think it would be a bad idea to have a real clinic under one roof. My internist offers psychology help and my GI doctor offers dietitians but I feel hesitant to take them up on it since I am mainly doing well. Maybe a support group? I know this blog offers support hearing from others with the same issues.