Comments on: 5 Reasons You Need Celiac Disease Testing

By: Shannon

Shannon — Sat, 31 May 2025 13:47:00 +0000

My daughter was diagnosed 2 years ago with regressive autism (at 3 and a half), sensory integration disorder and developmental delays. She previously had met all milestones and had no concerns. Following some illnesses she started to regress. Long story short I pushed to have additional testing done, I believed something caused this regression. She had celiac disease! 2 years later she is not autistic or anything else, only celiac. All those diagnoses have been removed and the doctors believe it was neuroinflammation related to celiac disease. Our celiac provider believes 20% of all autistic cases and schizophrenic cases are undiagnosed celiac disease. So if you notice your child has regressive type autism, my opinion, consider celiac disease.

By: Margaret Clegg

Margaret Clegg — Tue, 31 May 2022 13:56:54 +0000

In reply to Theresa Brandon. Sorry it took you so long to get diagnosed. Glad to know that you finally had drs who were knowledgeable.

By: Theresa Brandon

Theresa Brandon — Sun, 29 May 2022 17:11:14 +0000

I was 55 when diagnosed. Had been seeing an Internist for 10 years as he removed polyps many times. Lost all my hair. Could barely see or walk. Couldn’t work or drive. Had viruses all the time. Migraines were unbearable. Brain fog was so severe, didn’t know my name or anyone elses. most of time. Had a ringing in my left ear 24 hours a day. My face was distorted from the pain. The last 6 weeks before being diagnosed I couldn’t eat. If I smelled food I would become sick to stomach. I was having 18 episodes of diarrhea daily. I was loosing 1 to 1 1/2 lbs daily. My family doctor called me at 7 am one morning to tell me my vital organs were shutting down and I was dying. She wanted me to see one more doctor. So at 9am I was in his office. He took one look and put me in hospital. That is when I learned I had Celiac disease. Never heard of it, but boy did I learn fast. I had to learn to re-eat food again. One tablespoon at a time. Since then and learning all I could, I believe Celiac started at 9 months of age with me with Febrile seizures. I was so lucky to have my gastro doctor, Dr. Murray from Mayo and Dr. Fasano on my side as I healed. I gained 65 pounds while healing. 30 extra I don’t need, but it just stays. Guess my system doesn’t want to go into starvation mode again. The other regret I have, my Mother and Sister passed and I believe they also had Celiac. My Grandfather passed in 1946 and I believe he had Dermatitis Herpetiformis Disease. My Daughter and Granddaughter both have tested positive for Celiac.